Organization Links

Organizations

AboutFace International
ALS Association
American Association for Respiratory Care (AARC)
American Speech-Language-Hearing Assoc. (ASHA)
Brain Injury Association
Broward Children's Center
Canadian Organization for Rare Disorders (CORD)
Charcot-Marie-Tooth Disease Association
Charge Syndrome Foundation
Children's Craniofacial Association
Christopher and Dana Reeve Foundation
Cystic Fibrosis Foundation
Dystonia Medical Research Foundation
Easter Seal Society
FACES - National Craniofacial Association
Guillain-Barré Syndrome Foundation International
March of Dimes Birth Defects Foundation
Moebius Syndrome Foundation
Muscular Dystrophy Association
Myasthenia Gravis Foundation of America
myFace
National Down Syndrome Congress
National Down Syndrome Society
National Organization for Rare Disorders (NORD)
National Spinal Cord Injury Association
Operation Smile
Spina Bifida Association of America
Spina Bifida and Hydrocephalus Assoc. of Canada
United Cerebral Palsy
World Institute on Disability

Networks

Aaron's Tracheostomy Page
Ability OnLine Support Network
Achieva (was ARC Allegheny)
Congenital Central Hypoventilation Syndrome Parent Network
Duchenne Parent Project
Families of Spinal Muscular Atrophy
Family to Family Network
International Ventilator Users Network (IVUN)
Matrix Parent Network Resource Center
Mothers United for Moral Support (MUMS)
Parent to Parent of Pennsylvania
Parents Helping Parents, The Family Resource Center
Pierre Robin Network
Spinal Cord Injury Information Network
Health Journeys

Informational

Aaron's Tracheostomy Page
Adaptations by Adrian
Aging With Dignity - 5 Wishes Health Directive
Christopher & Dana Reeve Paralysis Resource Center
Exceptional Parent Magazine
National Health Information Center (NHIC)
National Information Center for Child & Youth with Disabilities (NICHCY)
National Rehab Information Center (NARIC)
Speech, Language, and Hearing Sciences University of Colorado
Diestco-Great Stuff for Scooters, Wheelchairs, & Walkers

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